Shashi Tharoor wrote in the letter, he has received a letter from the parents of baby Niharka. The girl was diagnosed with high-risk neuroblastoma (stage IV), a rare form of cancer. The patient has completed some stages of treatment, but is still at risk of re-emergence of the disease. Doctors suggested immunotherapy treatment for him. In this, Dinutuximab Beta (Qarziba) medicine will be administered to the girl child, which is a very expensive medicine. One dose of this is currently imported at the cost of 16 lakh rupees per bottle. He said that the total cost of the immunotherapy cycle would be around 63 lakh rupees and the parents raised most of the money through crowdfunding and donations. At the same time, the GST imposed on these imported medicines will result in an additional burden of several lakhs of rupees, which the parents cannot afford.
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